Monday, November 14, 2011

"Kids, This is my MS... MS, Meet my Kids."

Emily and I walked to the mailbox every day over the Summer. I made her put shoes on and I braved the hot sidewalk because a) I'm too lazy to get my own shoes and (b) I don't really see the point since I can't feel temperature in my feet. As it turned out, this provided my first opportunity to talk about Multiple Sclerosis with Emily. She wanted to know why I wasn't wearing shoes and I told her that Mommy's legs and feet are sick. Sometimes I can't feel things the same way everyone else does. She has asked a few times why we're moving and I explained that stairs are becoming a little tricky.  Our new house doesn't have stairs.  This is as far as these conversations go at this point. It's not like I'm going to start talking about myelin and lesions with a toddler!

I figure there are two ways that a parent can let their kids in on the presence of a chronic health condition... Either we have a dramatic family meeting at some point (think Lifetime Original movie) where everyone sits down with serious faces and tries NOT to scare the kids (ultimately terrifying them, of course) or it can just be a part of our everyday lives from the beginning.  I'd prefer that.  I'm happy I was diagnosed when Emily was just a baby -- This will never be new to her or to Jacob.

My neurologist is urging me to go back on my disease-modifying therapy (Rebif) sooner rather than later. He's pushing for me to stop breastfeeding at 6 months so I can return to giving myself injections 3x / week. For obvious reasons, I'm not super motivated to do that! Thankfully I'm a dairy cow and have a full freezer of breast milk already (Moo). My symptoms have returned with a vengeance since Jacob was born and I doubt I'll be able to hide my Tin Man walk when I see the doctor this month.  I still plan on arguing for at least another month or two, though.

Once I go back on Rebif I've decided I want to do my
HAMSTER DANCE in front of Emily on occasion.  My only worry is that this will be yet another thing she shares with teachers that just sounds bad. They're already going to hear "My Mommy and Daddy finished a WHOLE bottle of wine last night!" Now she may say, "My Mommy has a whole big box of used needles!" That should make parent-teacher conferences interesting!  We'll cross that bridge when we come to it.

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